LEAP

Introducing

Lived Experience Action Panel for Misophonia* Media and Research

*and misokinesia and related afflictions.

TEXT IMAGE: “Nothing about us without us.” in misophonia research.

What is the Lived Experience Action Panel for Misophonia [LEAP]?

The Lived Experience Action Panel for Misophonia [LEAP] is a diverse panel of 5-8 volunteers, all of whom have lived experience with misophonia and/or misokinesia, including individuals with the disorder and their family members.

LEAP evolved as a response to growing research and awareness of misophonia and the need for inclusive representation of personal experience with misophonia in the ongoing research, media, and beyond.

Submission Process

What types of content does LEAP review?

  • study concepts

  • academic/research papers

  • social media posts

  • blog articles & essays

  • presentations

  • news publications

  • そして他にも!

At this time, LEAP will also give feedback on unrelated content that the creator aims to adapt for a misophonic audience.

Inquiring researchers, clinicians, journalists, etc. should submit their work to LEAP via the form below, allowing three weeks for reviewing and processing.

Researchers seeking feedback during the development of scientific research should include the following if applicable:

  • Abstract: 1 page or less

  • Aims: 1 page or less

  • Impact statement: 1 page or less

Goals of the LEAP:

To review materials submitted by misophonia researchers, clinicians, and other content creators in an effort to:

  • Assist researchers, clinicians, and content creators in understanding the needs and viewpoints of those with lived experience of misophonia, in general.

  • Help researchers develop research topics and hypotheses about misophonia that are informed by first-hand experience and represent the misophonia community.

  • Support researchers and content creators to better understand the impact of wording used in social media posts, research papers, blog articles, presentations, news publications, and more to help build a more cohesive representation of misophonia that includes accurate lived experience.

  • Support and uphold ethics in research as stated by the National Institutes of Health with the understanding that science and its institutions are vulnerable to disability discrimination, racism, sexism, homophobia and the like. LEAP will attend to the potential intersection of scientific research and these forces of oppression that are sometimes repeated within the practice and production of science and scientific knowledge.

Read about a study that included the LEAP here:

LEAP Panelists

  • ジェニファー・ブラウト、PsyD

    ジェニファー・ブラウト、PsyD

    ミソフォニアを持ち、ミソフォニアの親です。

  • クリス・エドワーズ、MFA、CPS

    クリス・エドワーズ、MFA、CPS

    ミソフォニア(発声拒否症)を持っています。

  • CJ・ギブソン、ミシシッピ州

    CJ・ギブソン、ミシシッピ州

    ミソフォニア(発声拒否症)を持っています。

  • エリー・ラップ、学士

    エリー・ラップ、学士

    ミソフォニア(発声拒否症)を持っています。

  • サマンサ・ジンブラー、学士

    サマンサ・ジンブラー、学士

    ミソフォニア(発声拒否症)を持っています。

Published Studies on Misophonia Reviewed by LEAP

ミソフォニアで繁栄する方法について詳しく知りたい場合は、連絡を取り合ってください。

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